Mobile Advocacy: Children’s Palliative Care
The mission consisted of three goals. The first is to raise the awareness that “Children’s Palliative Care is a Basic Human Right”. The second is to connect members via personalized distributed communication platform. The third is to create a community in order to provide a space for people to get support and share resources as the idea of a “palliative care” for children is not always easily understood by parents or accepted by medical professionals.
We wanted to design an innovative telecommunications system with the use of SMS. We were also aware that this system needs to cater to an international crowd and all types of mobile phones. Everyone in the world has access or owns a mobile device regardless of the brand or model, which meant that everyone in the world had SMS in common.
For the three month project: 1)Provide Access to System Via SMS: Mobile platform for Q&A communication among health care professionals,
caregivers and patients in support of Children’s Palliative Care. Software: TWILIO built with PHP. 2) Provide a platform for direct interaction, create an online
forum those with access to a computer. 3) Enhance communication, dialogue, information exchange, suggestions, responses, learning, education.
No.1- Create and advocacy campaign structured around the message that children’s “Palliative Care is a Basic Human Right”. The campaign will
funnel people to the Web Platform where we will see “endorsers”, case studies and health care providers who are well informed practitioners
of palliative care. The “point of ignition” will be in the form of a traditional campaign (i.e. printed materials; ads, posters, brochures handed
to patients, also radio).
No. 2- Target audience would be uninformed practitioners.
No. 3- Web platform also contains mobile registration process, database, social media capabilities, SMS, resources, etc. This is a place for
“endorsers” to share their stories, encourage participation and offer support/ advice.
No. 4- Doctors will encourage children and parents to register
for SMS messages that will guide help them as they deal with the prognosis.
For distribution and instructions.
To keep it simple, we only kept buttons and menus that at a minimum and other distracting images. We wanted the site to be straight to the point.
Mobile Task Flow:
WEBSITE + APP:
BOLIVIA: Mother in Rural Area
1. Mother’s child gets diagnosed of a terminal illness and is given the rack card from a local clinic.
2. She registers her mobile phone for the service which is a two step process.
3. She texts in her first concern which is stored in the website which then prompts a pediatrician; who lives and practices children’s
palliative at the capital.
4. The pediatrician then gets involve and begins to communicate with the concerned mother.
5. The dialogue continues for as long as all the mother’s questions are answered. Once the is answered, Mother prompts service to stop.
SOUTH AFRICA: Sharing Resources
1. A mother in rural area has three children with another one on its way. One of her children is diagnosed with a life limiting illness, which he
is in Johannesburg receiving treatment and has only a few more days to live. Since her current pregnancy is complicated which requires her bed
rest, she is not able to make the journey to see her ill child.
2. A children’s palliative care social worker remembers about the mobile outreach system and uses it to help the mother. She sends a text
message onto the site asking if there are any available nurses or doctors that can be there for the dying child in place of their mother.
3. The question is picked up by a nurse from another area.
4. The nurse asks around and gets a response from a doctor.
5. The doctor obliges and sees the child through his last moments. The mother is relieved that someone is there to provide solace and comfort
in her place.